Development of Novel Patient-Reported Outcome (PRO) and Observer-Reported Outcome (ObsRO) Instruments in Retinitis Pigmentosa (RP) and Leber Congenital Amaurosis (LCA): ViSIO-PRO and ViSIO-ObsRO

INTRODUCTION: Retinitis pigmentosa (RP) and Leber congenital amaurosis (LCA) are rare inherited retinal degenerative disorders resulting in visual impairments and impacts on patients’ vision-dependent activities of daily living (ADL), mobility and distal health-related quality of life (HRQoL). This...

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Detalles Bibliográficos
Autores principales: Audo, Isabelle, Patalano, Francesco, Naujoks, Christel, Spera, Claudio, Fischer, M. Dominik, Green, Jane, Kay, Christine, Durham, Todd, Williamson, Nicola, Bradley, Helena, Barclay, Melissa, Boparai, Kieran, Banhazi, Judit
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer Healthcare 2023
Materias:
Original Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10287847/
https://www.ncbi.nlm.nih.gov/pubmed/37210697
http://dx.doi.org/10.1007/s40123-023-00724-x

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10287847/
https://www.ncbi.nlm.nih.gov/pubmed/37210697
http://dx.doi.org/10.1007/s40123-023-00724-x

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