Burden of adult neurofibromatosis 1 questionnaire: translation and psychometric properties of the Persian version

BACKGROUND: The notion of “burden” has taken a key place in the evaluation of care, particularly in the case of rare diseases. The aim of this study was to evaluate the psychometric properties of the burden of neurofibromatosis 1 questionnaire (BoN) and to determine the perceived disease burden. RES...

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Detalles Bibliográficos
Autores principales: Jahanshahi, Reza, Yasaghi, Zahra, Mirzaei, Fatemeh, Ghasemi, Shohreh, Sanagoo, Akram, Jouybari, Leila, Foji, Samira
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2023
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10290304/
https://www.ncbi.nlm.nih.gov/pubmed/37353850
http://dx.doi.org/10.1186/s13023-023-02681-x

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10290304/
https://www.ncbi.nlm.nih.gov/pubmed/37353850
http://dx.doi.org/10.1186/s13023-023-02681-x

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