The Transthyretin Amyloidosis – Quality of Life (ATTR-QOL) Questionnaire: Development of a Conceptual Model and Disease-Specific Patient-Reported Outcome Measure

PURPOSE: Patients with transthyretin amyloidosis (ATTR) experience a wide variety of symptoms and impacts on health-related quality of life (HRQoL). However, the lack of an ATTR-specific patient-reported outcome (PRO) measure has made consistent measurement of HRQoL in ATTR challenging. This paper d...

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Detalles Bibliográficos
Autores principales: O’Connor, Meaghan, Hsu, Kristen, Broderick, Lynne, McCausland, Kristen L, LaGasse, Kaitlin, Rebello, Sabrina, Carty, Michelle, Lousada, Isabelle
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Dove 2023
Materias:
Original Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10335277/
https://www.ncbi.nlm.nih.gov/pubmed/37441025
http://dx.doi.org/10.2147/PROM.S411721

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10335277/
https://www.ncbi.nlm.nih.gov/pubmed/37441025
http://dx.doi.org/10.2147/PROM.S411721

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