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Ear and upper airway clinical outcome measures for use in primary ciliary dyskinesia research: a scoping review

BACKGROUND: Primary ciliary dyskinesia (PCD) is a rare genetic disorder characterised by pulmonary, otological and sino-nasal manifestations. Well-defined clinical outcome measures are needed in such rare diseases research to improve follow-up and treatments. Pulmonary outcome measures have recently...

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Detalles Bibliográficos
Autores principales: Alexandru, Mihaela, Veil, Raphaël, Rubbo, Bruna, Goutaki, Myrofora, Kim, Sookyung, Lam, Yin Ting, Nevoux, Jérôme, Lucas, Jane S., Papon, Jean-François
Formato: Online Artículo Texto
Lenguaje:English
Publicado: European Respiratory Society 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10336562/
https://www.ncbi.nlm.nih.gov/pubmed/37437912
http://dx.doi.org/10.1183/16000617.0200-2022