Psychometric evaluation of a patient-reported outcomes instrument for congenital thrombotic thrombocytopenic purpura

BACKGROUND: Congenital thrombotic thrombocytopenic purpura (cTTP) is an ultra-rare, life-threatening hereditary disorder that causes patients to experience significant morbidity and decreased health-related quality of life (HRQoL). A cTTP disease-specific patient-reported outcome (PRO) instrument th...

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Detalles Bibliográficos
Autores principales: Oladapo, Abiola, Ito, Diane, Rodriguez, Ana María, Philpott, Stephanie, Krupnick, Robert, Allen, Veleka, Hibbard, Christopher, Scully, Marie, Ewenstein, Bruce
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer International Publishing 2023
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10349015/
https://www.ncbi.nlm.nih.gov/pubmed/37450201
http://dx.doi.org/10.1186/s41687-023-00592-w

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10349015/
https://www.ncbi.nlm.nih.gov/pubmed/37450201
http://dx.doi.org/10.1186/s41687-023-00592-w

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