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Research involvement and engagement of adolescent and young adults in a cancer trajectory: a 5-year experience from a patient support facility at a university hospital

BACKGROUND: The purpose of this case study is to describe how a vulnerable group of patients can be included in research. The activities, challenges, lessons learned, and reflections on the importance of patient involvement in research for 5 years (2016–2021) at the adolescent and young adult (AYA)...

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Detalles Bibliográficos
Autores principales: Pappot, Helle, Meier, Sara Kaa, Hjerming, Maiken, Piil, Karin, Hanghøj, Signe
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10362634/
https://www.ncbi.nlm.nih.gov/pubmed/37480141
http://dx.doi.org/10.1186/s40900-023-00464-z