Psychosocial impact at the time of a rare disease diagnosis

Over half of all persons with rare diseases (RDs) in Spain experience diagnostic delay (DD) but little is known about its consequences. This study therefore aimed to analyze the psychological impact of obtaining a diagnosis of an RD, and to ascertain what social determinants are influenced and what...

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Detalles Bibliográficos
Autores principales: Benito-Lozano, Juan, Arias-Merino, Greta, Gómez-Martínez, Mario, Arconada-López, Beatriz, Ruiz-García, Begoña, Posada de la Paz, Manuel, Alonso-Ferreira, Verónica
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Public Library of Science 2023
Materias:
Research Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10381039/
https://www.ncbi.nlm.nih.gov/pubmed/37506095
http://dx.doi.org/10.1371/journal.pone.0288875

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10381039/
https://www.ncbi.nlm.nih.gov/pubmed/37506095
http://dx.doi.org/10.1371/journal.pone.0288875

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