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Psychosocial impact at the time of a rare disease diagnosis
Over half of all persons with rare diseases (RDs) in Spain experience diagnostic delay (DD) but little is known about its consequences. This study therefore aimed to analyze the psychological impact of obtaining a diagnosis of an RD, and to ascertain what social determinants are influenced and what...
Autores principales: | Benito-Lozano, Juan, Arias-Merino, Greta, Gómez-Martínez, Mario, Arconada-López, Beatriz, Ruiz-García, Begoña, Posada de la Paz, Manuel, Alonso-Ferreira, Verónica |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Public Library of Science
2023
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10381039/ https://www.ncbi.nlm.nih.gov/pubmed/37506095 http://dx.doi.org/10.1371/journal.pone.0288875 |
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