Stakeholder engagement in the development of an upper extremity outcome measure for children with rare musculoskeletal conditions

BACKGROUND: Upper extremity (UE) involvement is prevalent in 73% of individuals with arthrogryposis multiplex congenita (AMC), yet no AMC-specific outcome measure exists. When developing a measure specific to a population with a rare musculoskeletal condition, clinicians’ and patients’ perspectives...

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Detalles Bibliográficos
Autores principales: Elfassy, Caroline, Wagner, Lisa, Higgins, Johanne, Montpetit, Kathleen, Snider, Laurie, Dahan-Oliel, Noémi
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2023
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10408044/
https://www.ncbi.nlm.nih.gov/pubmed/37553603
http://dx.doi.org/10.1186/s40900-023-00479-6

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10408044/
https://www.ncbi.nlm.nih.gov/pubmed/37553603
http://dx.doi.org/10.1186/s40900-023-00479-6

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