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Stakeholder engagement in the development of an upper extremity outcome measure for children with rare musculoskeletal conditions
BACKGROUND: Upper extremity (UE) involvement is prevalent in 73% of individuals with arthrogryposis multiplex congenita (AMC), yet no AMC-specific outcome measure exists. When developing a measure specific to a population with a rare musculoskeletal condition, clinicians’ and patients’ perspectives...
| Autores principales: | , , , , , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
| Publicado: |
BioMed Central
2023
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| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10408044/ https://www.ncbi.nlm.nih.gov/pubmed/37553603 http://dx.doi.org/10.1186/s40900-023-00479-6 |