Paroxysmal nocturnal hemoglobinuria: patient journey and burden of disease

Patients with paroxysmal nocturnal hemoglobinuria (PNH) often experience a lengthy path to diagnosis. Fewer than 40% of patients with PNH receive a diagnosis within 12 months of symptom onset, and 24% of all PNH diagnoses can take 5 years or longer. Diagnostic delay is a source of distress and can a...

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Detalles Bibliográficos
Autores principales: Bektas, Meryem, Copley-Merriman, Catherine, Khan, Shahnaz, Sarda, Sujata P, Shammo, Jamile M
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Academy of Managed Care Pharmacy 2020
Materias:
Supplement
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10408416/
https://www.ncbi.nlm.nih.gov/pubmed/33356781
http://dx.doi.org/10.18553/jmcp.2020.26.12-b.s8

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10408416/
https://www.ncbi.nlm.nih.gov/pubmed/33356781
http://dx.doi.org/10.18553/jmcp.2020.26.12-b.s8

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