Burden of caregivers of patients with neuronopathic and non-neuronopathic Gaucher disease in Japan: A survey-based study

BACKGROUND: Gaucher disease (GD), a rare lysosomal storage disorder, is associated with considerable patient and caregiver burden. We examined the applicability of existing caregiver questionnaires and assessed the level of burden in caregivers of patients with GD. METHODS: This cross-sectional, non...

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Detalles Bibliográficos
Autores principales: Koto, Yuta, Narita, Aya, Noto, Shinichi, Okada, Masafumi, Ono, Midori, Baba, Terumi, Sagara, Rieko, Sakai, Norio
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Elsevier 2023
Materias:
Research Paper
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10412861/
https://www.ncbi.nlm.nih.gov/pubmed/37576570
http://dx.doi.org/10.1016/j.ymgmr.2023.100994

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10412861/
https://www.ncbi.nlm.nih.gov/pubmed/37576570
http://dx.doi.org/10.1016/j.ymgmr.2023.100994

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