Healthcare utilization and unmet needs of patients with antisynthetase syndrome: An international patient survey

Antisynthease syndrome (ASSD) is a rare, complex and understudied autoimmune disease. Internet-based studies can overcome barriers of traditional on-site research and are therefore very appealing for rare diseases. The aim of this study was to investigate patient-reported symptoms, diagnostic delay,...

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Detalles Bibliográficos
Autores principales: Weiss, M., Holzer, M. T., Muehlensiepen, F., Ignatyev, Y., Fiehn, C., Bauhammer, J., Schmidt, J., Schlüter, S., Dihkan, A., Scheibner, D., Schneider, U., Valor-Mendez, L., Corte, G., Gupta, L., Chinoy, H., Lundberg, I., Cavagna, L., Distler, J. H. W., Schett, G., Knitza, J.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer Berlin Heidelberg 2023
Materias:
Patient Opinion
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10435645/
https://www.ncbi.nlm.nih.gov/pubmed/37452880
http://dx.doi.org/10.1007/s00296-023-05372-9

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10435645/
https://www.ncbi.nlm.nih.gov/pubmed/37452880
http://dx.doi.org/10.1007/s00296-023-05372-9

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