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Determining the Relationship Between Seizure-Free Days and Other Predictors of Quality of Life in Patients with Dravet Syndrome and Their Carers from FFA Registration Studies

INTRODUCTION: Dravet syndrome (DS) is a rare, lifelong epileptic encephalopathy characterised by frequent and severe seizures associated with premature mortality. Typically diagnosed in infancy, patients also experience progressive behavioural, motor-function and cognitive decline. Twenty percent of...

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Detalles Bibliográficos
Autores principales: Pinsent, Amy, Weston, Georgie, Adams, Elisabeth J., Linley, Warren, Hawkins, Neil, Schwenkglenks, Matthias, Hamlyn-Williams, Charlotte, Toward, Toby
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer Healthcare 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10444918/
https://www.ncbi.nlm.nih.gov/pubmed/37328668
http://dx.doi.org/10.1007/s40120-023-00510-8