Assessing the impact of grief on quality of life, work productivity, and health outcomes for parents bereaved from SMA: A study protocol

BACKGROUND: U.S. cost-effectiveness recommendations suggest that analyses should include all costs and effects relevant to the decision problem [1]. However, in many diseases, including spinal muscular atrophy (SMA), few studies have evaluated bereaved family outcomes after a child has died, neglect...

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Detalles Bibliográficos
Autores principales: Riley, Abigail G., Mulé, Christina M., Lerner, Debra, Belter, Lisa, O’Toole, Colleen McCarthy, Kowal, Stacey, Fox, David, Shapouri, Sheila, Vesel, Tamara, Lavelle, Tara A.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2023
Materias:
Study Protocol
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10464285/
https://www.ncbi.nlm.nih.gov/pubmed/37612702
http://dx.doi.org/10.1186/s12962-023-00465-5

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10464285/
https://www.ncbi.nlm.nih.gov/pubmed/37612702
http://dx.doi.org/10.1186/s12962-023-00465-5

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