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“I am not a number!” Opinions and preferences of people with intellectual disability about genetic healthcare

There is limited research exploring the knowledge and experiences of genetic healthcare from the perspective of people with intellectual disability. This study, conducted in New South Wales (Australia), addresses this gap. Eighteen adults with intellectual disability and eight support people were in...

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Detalles Bibliográficos
Autores principales: Strnadová, Iva, Loblinzk, Julie, Scully, Jackie Leach, Danker, Joanne, Tso, Michelle, Jackaman, Karen-Maia, Dunn, Manjekah, Willow, Sierra Angelina, Sarfaraz, Skie, Fitzgerald, Vanessa, Boyle, Jackie, Palmer, Elizabeth Emma
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer International Publishing 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10474088/
https://www.ncbi.nlm.nih.gov/pubmed/36670247
http://dx.doi.org/10.1038/s41431-023-01282-3