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“I am not a number!” Opinions and preferences of people with intellectual disability about genetic healthcare
There is limited research exploring the knowledge and experiences of genetic healthcare from the perspective of people with intellectual disability. This study, conducted in New South Wales (Australia), addresses this gap. Eighteen adults with intellectual disability and eight support people were in...
Autores principales: | Strnadová, Iva, Loblinzk, Julie, Scully, Jackie Leach, Danker, Joanne, Tso, Michelle, Jackaman, Karen-Maia, Dunn, Manjekah, Willow, Sierra Angelina, Sarfaraz, Skie, Fitzgerald, Vanessa, Boyle, Jackie, Palmer, Elizabeth Emma |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Springer International Publishing
2023
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10474088/ https://www.ncbi.nlm.nih.gov/pubmed/36670247 http://dx.doi.org/10.1038/s41431-023-01282-3 |
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