Interventions for improving clinical outcomes and health-related quality-of-life for people living with skeletal dysplasias: an evidence gap map

PURPOSE: Skeletal dysplasias are rare genetic disorders that are characterized by abnormal development of bone and cartilage. There are multiple medical and non-medical treatments for specific symptoms of skeletal dysplasias e.g. pain, as well as corrective surgical procedures to improve physical fu...

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Detalles Bibliográficos
Autores principales: Moy, Naomi, Flynn, Darren, Henriquez, Josefa, Connelly, Luke B., Vale, Luke, Paolucci, Francesco
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer International Publishing 2023
Materias:
Review
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10474209/
https://www.ncbi.nlm.nih.gov/pubmed/37294397
http://dx.doi.org/10.1007/s11136-023-03431-z

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10474209/
https://www.ncbi.nlm.nih.gov/pubmed/37294397
http://dx.doi.org/10.1007/s11136-023-03431-z

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