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Interventions for improving clinical outcomes and health-related quality-of-life for people living with skeletal dysplasias: an evidence gap map
PURPOSE: Skeletal dysplasias are rare genetic disorders that are characterized by abnormal development of bone and cartilage. There are multiple medical and non-medical treatments for specific symptoms of skeletal dysplasias e.g. pain, as well as corrective surgical procedures to improve physical fu...
Autores principales: | Moy, Naomi, Flynn, Darren, Henriquez, Josefa, Connelly, Luke B., Vale, Luke, Paolucci, Francesco |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Springer International Publishing
2023
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10474209/ https://www.ncbi.nlm.nih.gov/pubmed/37294397 http://dx.doi.org/10.1007/s11136-023-03431-z |
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