Consensus recommendations on holistic care in hereditary ATTR amyloidosis: an international Delphi survey of patient advocates and multidisciplinary healthcare professionals

BACKGROUND: Hereditary transthyretin-mediated amyloidosis is a rare, progressive and potentially life-limiting multisystem disease, affecting every aspect of a patient’s life. OBJECTIVES: This online international Delphi survey aimed to evolve clinical−patient-led practical guidance, to inspire and...

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Detalles Bibliográficos
Autores principales: Obici, Laura, Callaghan, Rosaline, Ablett, Joanne, Bibiloni, Catilena, Bueser, Teofila, Conceição, Isabel, Dongiglio, Francesca, Farrugia, Agnès, Knebel, Fabian, Lane, Thirusha, Larsson, Lars-Ove, Morier, Agnès, Nicholas, Vincent, Coelho, Teresa
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BMJ Publishing Group 2023
Materias:
Patient-Centred Medicine
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10481833/
https://www.ncbi.nlm.nih.gov/pubmed/37669844
http://dx.doi.org/10.1136/bmjopen-2023-073130

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10481833/
https://www.ncbi.nlm.nih.gov/pubmed/37669844
http://dx.doi.org/10.1136/bmjopen-2023-073130

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