Activities of Clinical Expertise and Research in a Rare Disease Referral Centre: A Place for Telemedicine beyond the COVID-19 Pandemic?

Introduction: Rare disease referral centres are entrusted with missions of clinical expertise and research, two activities that have to contend with numerous obstacles. Providing specialist opinions is time-consuming, uncompensated and limited by difficulties in exchanging medical data. Clinical res...

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Detalles Bibliográficos
Autores principales: Ducrocq, Quentin, Guédon-Moreau, Laurence, Launay, David, Terriou, Louis, Morell-Dubois, Sandrine, Maillard, Hélène, Lefèvre, Guillaume, Sobanski, Vincent, Lambert, Marc, Yelnik, Cécile, Farhat, Meryem-Maud, Garcia Fernandez, Maria José, Hachulla, Eric, Sanges, Sébastien
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2023
Materias:
Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10487162/
https://www.ncbi.nlm.nih.gov/pubmed/37685481
http://dx.doi.org/10.3390/healthcare11172447

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10487162/
https://www.ncbi.nlm.nih.gov/pubmed/37685481
http://dx.doi.org/10.3390/healthcare11172447

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