Understanding the impact of pediatric single large‐scale mtDNA deletion syndromes on caregivers: Burdens and challenges

Single large‐scale mitochondrial deletion syndromes (SLSMDS) are ultra‐rare, progressive multi‐system diseases that make children largely dependent on their caregivers for both medical and non‐medical needs. Yet, few studies have examined the burden felt among caregivers. As part of a larger researc...

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Detalles Bibliográficos
Autores principales: Chappell, McKenzie, Parikh, Sumit, Reynolds, Elizabeth
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley & Sons, Inc. 2023
Materias:
Research Reports
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10494495/
https://www.ncbi.nlm.nih.gov/pubmed/37701326
http://dx.doi.org/10.1002/jmd2.12385

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10494495/
https://www.ncbi.nlm.nih.gov/pubmed/37701326
http://dx.doi.org/10.1002/jmd2.12385

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