Data saves lives: optimising routinely collected clinical data for rare disease research

Necessity driven organisational change in the post-pandemic landscape has seen health care providers adopting innovations to manage and process health data. These include the use of ‘real-world’ datasets of routinely collected clinical information, enabling data-driven delivery. Rare disease risks b...

Descripción completa

Detalles Bibliográficos
Autores principales: Solebo, Ameenat Lola, Hysi, Pirro, Horvat-Gitsels, Lisanne Andra, Rahi, Jugnoo Sangeeta
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2023
Materias:
Letter to the Editor
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10496203/
https://www.ncbi.nlm.nih.gov/pubmed/37697298
http://dx.doi.org/10.1186/s13023-023-02912-1

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10496203/
https://www.ncbi.nlm.nih.gov/pubmed/37697298
http://dx.doi.org/10.1186/s13023-023-02912-1

Ejemplares similares