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Guidance to develop a multidisciplinary, international, pediatric registry: a systematic review

AIM: The European Reference Network for craniofacial anomalies and ear, nose and throat disorders (ERN-CRANIO) aims to improve craniofacial care on a European scale. Within ERN-CRANIO, the cleft lip and palate (CL/P) work stream seeks to ameliorate health outcomes for patients with CL/P. This work s...

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Detalles Bibliográficos
Autores principales: Ombashi, S., van der Goes, P. A. J., Versnel, S. L., Khonsari, R. H., van der Molen, A. E. Mink
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10512647/
https://www.ncbi.nlm.nih.gov/pubmed/37735442
http://dx.doi.org/10.1186/s13023-023-02901-4