Evaluating case management for caregivers of children with spinal muscular atrophy type I and II—an exploratory, controlled, mixed-methods trial

INTRODUCTION: Spinal muscular atrophy (SMA) is a rare neuromuscular disease requiring various clinical specialists and therapists to provide care. Due to the disease's dynamic nature and the long distances between specialized centers and local providers, integrating care between disciplines can...

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Detalles Bibliográficos
Autores principales: Willems, Jana, Pechmann, Astrid, Wider, Sabine, Ambs, Rita, Meyer, Sylvia A. N., Cascante, Isabel, Sproß, Joachim, Mund, Annette, Farin-Glattacker, Erik, Langer, Thorsten
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Frontiers Media S.A. 2023
Materias:
Pediatrics
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10552854/
https://www.ncbi.nlm.nih.gov/pubmed/37808564
http://dx.doi.org/10.3389/fped.2023.1212012

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10552854/
https://www.ncbi.nlm.nih.gov/pubmed/37808564
http://dx.doi.org/10.3389/fped.2023.1212012

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