Inclusion body myositis—health-related quality of life and care situation during phases of the “patience journey” in Germany: results from a qualitative study

BACKGROUND: To understand the health-related quality of life (HRQoL) in inclusion body myositis (IBM) from a holistic perspective on the background of a complex care situation. The focus was on how the patient journey may be structured over the course of this rare disease. METHODS: An exploratory qu...

Descripción completa

Detalles Bibliográficos
Autores principales: Senn, Katja C., Thiele, Simone, Gumbert, Laura, Krause, Sabine, Walter, Maggie C., Nagels, Klaus H.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2023
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10566017/
https://www.ncbi.nlm.nih.gov/pubmed/37817114
http://dx.doi.org/10.1186/s12955-023-02196-w

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10566017/
https://www.ncbi.nlm.nih.gov/pubmed/37817114
http://dx.doi.org/10.1186/s12955-023-02196-w

Ejemplares similares