Cargando…
Patient pathways for rare diseases in Europe: ataxia as an example
BACKGROUND: Progressive ataxias are rare and complex neurological disorders that represent a challenge for the clinicians to diagnose and manage them. This study explored the patient pathways of individuals attending specialist ataxia centres (SAC) compared with non–specialist settings. We investiga...
Autores principales: | , , , , , , , , , |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2023
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10583310/ https://www.ncbi.nlm.nih.gov/pubmed/37848998 http://dx.doi.org/10.1186/s13023-023-02907-y |