Patient pathways for rare diseases in Europe: ataxia as an example

BACKGROUND: Progressive ataxias are rare and complex neurological disorders that represent a challenge for the clinicians to diagnose and manage them. This study explored the patient pathways of individuals attending specialist ataxia centres (SAC) compared with non–specialist settings. We investiga...

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Detalles Bibliográficos
Autores principales: Vallortigara, Julie, Greenfield, Julie, Hunt, Barry, Hoffman, Deborah, Reinhard, Carola, Graessner, Holm, Federico, Antonio, Quoidbach, Vinciane, Morris, Steve, Giunti, Paola
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2023
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10583310/
https://www.ncbi.nlm.nih.gov/pubmed/37848998
http://dx.doi.org/10.1186/s13023-023-02907-y

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10583310/
https://www.ncbi.nlm.nih.gov/pubmed/37848998
http://dx.doi.org/10.1186/s13023-023-02907-y

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