Care Issues in Patients with Rett Syndrome: A Parental Perspective

Background: The purpose of this study is to better understand the way caregivers of patients with Rett syndrome perceive the quality of the health care services they receive and identify its main shortcomings. Methods: A survey was distributed to all caregivers who are part of AIRETT (the Italian As...

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Detalles Bibliográficos
Autores principales: Cherchi, Claudio, Chiappini, Elena, Chiarini Testa, Maria Beatrice, Banfi, Paolo, Veneselli, Edvige, Cutrera, Renato
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2023
Materias:
Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10605630/
https://www.ncbi.nlm.nih.gov/pubmed/37892376
http://dx.doi.org/10.3390/children10101713

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10605630/
https://www.ncbi.nlm.nih.gov/pubmed/37892376
http://dx.doi.org/10.3390/children10101713

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