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Adult PKU Clinics in the UK—Users’ Experiences and Perspectives

Adults with PKU require life-long management, and ideally, their care should be in a specialised adult metabolic clinic. Their outcomes and co-morbidities have received much attention, but data are lacking on their experience, satisfaction and expectations about the care they receive. This survey re...

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Detalles Bibliográficos
Autores principales: Ilgaz, Fatma, Ford, Suzanne, O’Driscoll, Michael F., MacDonald, Anita
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10610305/
https://www.ncbi.nlm.nih.gov/pubmed/37892429
http://dx.doi.org/10.3390/nu15204352