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Adult PKU Clinics in the UK—Users’ Experiences and Perspectives
Adults with PKU require life-long management, and ideally, their care should be in a specialised adult metabolic clinic. Their outcomes and co-morbidities have received much attention, but data are lacking on their experience, satisfaction and expectations about the care they receive. This survey re...
Autores principales: | Ilgaz, Fatma, Ford, Suzanne, O’Driscoll, Michael F., MacDonald, Anita |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
MDPI
2023
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10610305/ https://www.ncbi.nlm.nih.gov/pubmed/37892429 http://dx.doi.org/10.3390/nu15204352 |
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