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‘It breaks my heart’: Healthcare practitioners’ caring for families with epidermolysis bullosa
BACKGROUND: Epidermolysis bullosa (EB) is a painful genodermatosis presenting with skin fragility and blisters. There is no cure; the prognosis is guarded and depends on the subtype of the disease. Managing these patients can be emotionally challenging for healthcare practitioners. AIM: To determine...
Autores principales: | , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
AOSIS
2023
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10623493/ https://www.ncbi.nlm.nih.gov/pubmed/37927945 http://dx.doi.org/10.4102/hsag.v28i0.2355 |