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Evaluation of variation in special educational needs provision and its impact on health and education using administrative records for England: umbrella protocol for a mixed-methods research programme

INTRODUCTION: One-third of children in England have special educational needs (SEN) provision recorded during their school career. The proportion of children with SEN provision varies between schools and demographic groups, which may reflect variation in need, inequitable provision and/or systemic f...

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Autores principales: Zylbersztejn, Ania, Lewis, Kate, Nguyen, Vincent, Matthews, Jacob, Winterburn, Isaac, Karwatowska, Lucy, Barnes, Sarah, Lilliman, Matthew, Saxton, Jennifer, Stone, Antony, Boddy, Kate, Downs, Johnny, Logan, Stuart, Rahi, Jugnoo, Black-Hawkins, Kristine, Dearden, Lorraine, Ford, Tamsin, Harron, Katie, De Stavola, Bianca, Gilbert, Ruth
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BMJ Publishing Group 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10626865/
https://www.ncbi.nlm.nih.gov/pubmed/37918923
http://dx.doi.org/10.1136/bmjopen-2023-072531
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author Zylbersztejn, Ania
Lewis, Kate
Nguyen, Vincent
Matthews, Jacob
Winterburn, Isaac
Karwatowska, Lucy
Barnes, Sarah
Lilliman, Matthew
Saxton, Jennifer
Stone, Antony
Boddy, Kate
Downs, Johnny
Logan, Stuart
Rahi, Jugnoo
Black-Hawkins, Kristine
Dearden, Lorraine
Ford, Tamsin
Harron, Katie
De Stavola, Bianca
Gilbert, Ruth
author_facet Zylbersztejn, Ania
Lewis, Kate
Nguyen, Vincent
Matthews, Jacob
Winterburn, Isaac
Karwatowska, Lucy
Barnes, Sarah
Lilliman, Matthew
Saxton, Jennifer
Stone, Antony
Boddy, Kate
Downs, Johnny
Logan, Stuart
Rahi, Jugnoo
Black-Hawkins, Kristine
Dearden, Lorraine
Ford, Tamsin
Harron, Katie
De Stavola, Bianca
Gilbert, Ruth
author_sort Zylbersztejn, Ania
collection PubMed
description INTRODUCTION: One-third of children in England have special educational needs (SEN) provision recorded during their school career. The proportion of children with SEN provision varies between schools and demographic groups, which may reflect variation in need, inequitable provision and/or systemic factors. There is scant evidence on whether SEN provision improves health and education outcomes. METHODS: The Health Outcomes of young People in Education (HOPE) research programme uses administrative data from the Education and Child Health Insights from Linked Data—ECHILD—which contains data from all state schools, and contacts with National Health Service hospitals in England, to explore variation in SEN provision and its impact on health and education outcomes. This umbrella protocol sets out analyses across four work packages (WP). WP1 defined a range of ‘health phenotypes’, that is health conditions expected to need SEN provision in primary school. Next, we describe health and education outcomes (WP1) and individual, school-level and area-level factors affecting variation in SEN provision across different phenotypes (WP2). WP3 assesses the impact of SEN provision on health and education outcomes for specific health phenotypes using a range of causal inference methods to account for confounding factors and possible selection bias. In WP4 we review local policies and synthesise findings from surveys, interviews and focus groups of service users and providers to understand factors associated with variation in and experiences of identification, assessment and provision for SEN. Triangulation of findings on outcomes, variation and impact of SEN provision for different health phenotypes in ECHILD, with experiences of SEN provision will inform interpretation of findings for policy, practice and families and methods for future evaluation. ETHICS AND DISSEMINATION: Research ethics committees have approved the use of the ECHILD database and, separately, the survey, interviews and focus groups of young people, parents and service providers. These stakeholders will contribute to the design, interpretation and communication of findings.
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spelling pubmed-106268652023-11-07 Evaluation of variation in special educational needs provision and its impact on health and education using administrative records for England: umbrella protocol for a mixed-methods research programme Zylbersztejn, Ania Lewis, Kate Nguyen, Vincent Matthews, Jacob Winterburn, Isaac Karwatowska, Lucy Barnes, Sarah Lilliman, Matthew Saxton, Jennifer Stone, Antony Boddy, Kate Downs, Johnny Logan, Stuart Rahi, Jugnoo Black-Hawkins, Kristine Dearden, Lorraine Ford, Tamsin Harron, Katie De Stavola, Bianca Gilbert, Ruth BMJ Open Epidemiology INTRODUCTION: One-third of children in England have special educational needs (SEN) provision recorded during their school career. The proportion of children with SEN provision varies between schools and demographic groups, which may reflect variation in need, inequitable provision and/or systemic factors. There is scant evidence on whether SEN provision improves health and education outcomes. METHODS: The Health Outcomes of young People in Education (HOPE) research programme uses administrative data from the Education and Child Health Insights from Linked Data—ECHILD—which contains data from all state schools, and contacts with National Health Service hospitals in England, to explore variation in SEN provision and its impact on health and education outcomes. This umbrella protocol sets out analyses across four work packages (WP). WP1 defined a range of ‘health phenotypes’, that is health conditions expected to need SEN provision in primary school. Next, we describe health and education outcomes (WP1) and individual, school-level and area-level factors affecting variation in SEN provision across different phenotypes (WP2). WP3 assesses the impact of SEN provision on health and education outcomes for specific health phenotypes using a range of causal inference methods to account for confounding factors and possible selection bias. In WP4 we review local policies and synthesise findings from surveys, interviews and focus groups of service users and providers to understand factors associated with variation in and experiences of identification, assessment and provision for SEN. Triangulation of findings on outcomes, variation and impact of SEN provision for different health phenotypes in ECHILD, with experiences of SEN provision will inform interpretation of findings for policy, practice and families and methods for future evaluation. ETHICS AND DISSEMINATION: Research ethics committees have approved the use of the ECHILD database and, separately, the survey, interviews and focus groups of young people, parents and service providers. These stakeholders will contribute to the design, interpretation and communication of findings. BMJ Publishing Group 2023-11-02 /pmc/articles/PMC10626865/ /pubmed/37918923 http://dx.doi.org/10.1136/bmjopen-2023-072531 Text en © Author(s) (or their employer(s)) 2023. Re-use permitted under CC BY. Published by BMJ. https://creativecommons.org/licenses/by/4.0/This is an open access article distributed in accordance with the Creative Commons Attribution 4.0 Unported (CC BY 4.0) license, which permits others to copy, redistribute, remix, transform and build upon this work for any purpose, provided the original work is properly cited, a link to the licence is given, and indication of whether changes were made. See: https://creativecommons.org/licenses/by/4.0/.
spellingShingle Epidemiology
Zylbersztejn, Ania
Lewis, Kate
Nguyen, Vincent
Matthews, Jacob
Winterburn, Isaac
Karwatowska, Lucy
Barnes, Sarah
Lilliman, Matthew
Saxton, Jennifer
Stone, Antony
Boddy, Kate
Downs, Johnny
Logan, Stuart
Rahi, Jugnoo
Black-Hawkins, Kristine
Dearden, Lorraine
Ford, Tamsin
Harron, Katie
De Stavola, Bianca
Gilbert, Ruth
Evaluation of variation in special educational needs provision and its impact on health and education using administrative records for England: umbrella protocol for a mixed-methods research programme
title Evaluation of variation in special educational needs provision and its impact on health and education using administrative records for England: umbrella protocol for a mixed-methods research programme
title_full Evaluation of variation in special educational needs provision and its impact on health and education using administrative records for England: umbrella protocol for a mixed-methods research programme
title_fullStr Evaluation of variation in special educational needs provision and its impact on health and education using administrative records for England: umbrella protocol for a mixed-methods research programme
title_full_unstemmed Evaluation of variation in special educational needs provision and its impact on health and education using administrative records for England: umbrella protocol for a mixed-methods research programme
title_short Evaluation of variation in special educational needs provision and its impact on health and education using administrative records for England: umbrella protocol for a mixed-methods research programme
title_sort evaluation of variation in special educational needs provision and its impact on health and education using administrative records for england: umbrella protocol for a mixed-methods research programme
topic Epidemiology
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10626865/
https://www.ncbi.nlm.nih.gov/pubmed/37918923
http://dx.doi.org/10.1136/bmjopen-2023-072531
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