The factorial survey as an approach to investigate clinical decision-making: examining influences on a clinician's decision to initiate life-sustaining clinical technology for a child with spinal muscular atrophy type 1

BACKGROUND: Spinal Muscular Atrophy (SMA) type 1 is a debilitating condition with a poor prognosis, though therapeutic advances are promising. Long-term ventilation is a common management strategy as respiratory function deteriorates. Without consensus on best practice respiratory management, the de...

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Detalles Bibliográficos
Autores principales: Quirke, Mary Brigid, Cassidy, Lorna, Alexander, Denise, Walsh, Cathal, Hill, Katie, Masterson, Kate, Flynn, Nia, Brenner, Maria
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Frontiers Media S.A. 2023
Materias:
Pediatrics
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10628481/
https://www.ncbi.nlm.nih.gov/pubmed/37941977
http://dx.doi.org/10.3389/fped.2023.1252440

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10628481/
https://www.ncbi.nlm.nih.gov/pubmed/37941977
http://dx.doi.org/10.3389/fped.2023.1252440

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