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The factorial survey as an approach to investigate clinical decision-making: examining influences on a clinician's decision to initiate life-sustaining clinical technology for a child with spinal muscular atrophy type 1
BACKGROUND: Spinal Muscular Atrophy (SMA) type 1 is a debilitating condition with a poor prognosis, though therapeutic advances are promising. Long-term ventilation is a common management strategy as respiratory function deteriorates. Without consensus on best practice respiratory management, the de...
Autores principales: | Quirke, Mary Brigid, Cassidy, Lorna, Alexander, Denise, Walsh, Cathal, Hill, Katie, Masterson, Kate, Flynn, Nia, Brenner, Maria |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Frontiers Media S.A.
2023
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10628481/ https://www.ncbi.nlm.nih.gov/pubmed/37941977 http://dx.doi.org/10.3389/fped.2023.1252440 |
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