Quality of life, socioeconomic and psychological concerns in parents of children with tuberous sclerosis complex, STXBP1 and SYNGAP1 encephalopathies: a mixed method study

BACKGROUND: Developmental and Epileptic Encephalopathies (DEEs) occur in childhood and are associated with severe epileptic seizures and neurological impairment. The aim of this study was to combine quantitative and qualitative methodologies to comprehensively describe factors related to quality of...

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Detalles Bibliográficos
Autores principales: Salcedo-Perez-Juana, María, Palacios-Ceña, Domingo, San-Martín-Gómez, Ana, Aledo-Serrano, Ángel, Florencio, Lidiane Lima
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Frontiers Media S.A. 2023
Materias:
Pediatrics
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10665567/
https://www.ncbi.nlm.nih.gov/pubmed/38027293
http://dx.doi.org/10.3389/fped.2023.1285377

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10665567/
https://www.ncbi.nlm.nih.gov/pubmed/38027293
http://dx.doi.org/10.3389/fped.2023.1285377

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