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Inter-institutional data-driven education research: consensus values, principles, and recommendations to guide the ethical sharing of administrative education data in the Canadian medical education research context
BACKGROUND: Administrative data are generated when educating, licensing, and regulating future physicians but these data are rarely used beyond their pre-specified purposes. The capacity necessary for sensitive and responsive oversight that supports the sharing of administrative medical education da...
Autores principales: | , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Canadian Medical Education Journal
2023
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10690000/ https://www.ncbi.nlm.nih.gov/pubmed/38045068 http://dx.doi.org/10.36834/cmej.75874 |
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author | Grierson, Lawrence Cavanagh, Alice Youssef, Alaa Lee-Krueger, Rachelle McNeill, Kestrel Button, Brenton Kulasegaram, Kulamakan |
author_facet | Grierson, Lawrence Cavanagh, Alice Youssef, Alaa Lee-Krueger, Rachelle McNeill, Kestrel Button, Brenton Kulasegaram, Kulamakan |
author_sort | Grierson, Lawrence |
collection | PubMed |
description | BACKGROUND: Administrative data are generated when educating, licensing, and regulating future physicians but these data are rarely used beyond their pre-specified purposes. The capacity necessary for sensitive and responsive oversight that supports the sharing of administrative medical education data across institutions for research purposes needs to be developed. METHOD: A pan-Canadian consensus-building project was undertaken to develop agreement on the goals, benefits, risks, values, and principles that should underpin inter-institutional data-driven medical education research in Canada. A survey of key literature, consultations with various stakeholders and five successive knowledge synthesis workshops informed this project. Propositions were developed, driving subsequent discussions until collective agreement was distilled. RESULTS: Consensus coalesced around six key principles: establishing clear purposes, rationale, and methodology for inter-institutional data-driven research a priori; informed consent from data generators in education systems is non-negotiable; multi-institutional data sharing requires special governance; data governance should be guided by data sovereignty; data use should be guided by an identified set of shared values; and best practices in research data-management should be applied. CONCLUSION: We recommend establishing a representative governance body, engaging trusted data facility, and adherence to extant data management policies when sharing administrative medical education data for research purposes in Canada. |
format | Online Article Text |
id | pubmed-10690000 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2023 |
publisher | Canadian Medical Education Journal |
record_format | MEDLINE/PubMed |
spelling | pubmed-106900002023-12-02 Inter-institutional data-driven education research: consensus values, principles, and recommendations to guide the ethical sharing of administrative education data in the Canadian medical education research context Grierson, Lawrence Cavanagh, Alice Youssef, Alaa Lee-Krueger, Rachelle McNeill, Kestrel Button, Brenton Kulasegaram, Kulamakan Can Med Educ J Commissioned Scientific Reports BACKGROUND: Administrative data are generated when educating, licensing, and regulating future physicians but these data are rarely used beyond their pre-specified purposes. The capacity necessary for sensitive and responsive oversight that supports the sharing of administrative medical education data across institutions for research purposes needs to be developed. METHOD: A pan-Canadian consensus-building project was undertaken to develop agreement on the goals, benefits, risks, values, and principles that should underpin inter-institutional data-driven medical education research in Canada. A survey of key literature, consultations with various stakeholders and five successive knowledge synthesis workshops informed this project. Propositions were developed, driving subsequent discussions until collective agreement was distilled. RESULTS: Consensus coalesced around six key principles: establishing clear purposes, rationale, and methodology for inter-institutional data-driven research a priori; informed consent from data generators in education systems is non-negotiable; multi-institutional data sharing requires special governance; data governance should be guided by data sovereignty; data use should be guided by an identified set of shared values; and best practices in research data-management should be applied. CONCLUSION: We recommend establishing a representative governance body, engaging trusted data facility, and adherence to extant data management policies when sharing administrative medical education data for research purposes in Canada. Canadian Medical Education Journal 2023-11-08 /pmc/articles/PMC10690000/ /pubmed/38045068 http://dx.doi.org/10.36834/cmej.75874 Text en © 2023 Grierson, Cavanagh, Youssef, Lee-Krueger, McNeill, Button, Kulasegaram; licensee Synergies Partners. https://creativecommons.org/licenses/by-nc-nd/4.0/This is an Open Journal Systems article distributed under the terms of the Creative Commons Attribution License. (https://creativecommons.org/licenses/by-nc-nd/4.0 (https://creativecommons.org/licenses/by-nc-nd/4.0/) ) which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is cited. |
spellingShingle | Commissioned Scientific Reports Grierson, Lawrence Cavanagh, Alice Youssef, Alaa Lee-Krueger, Rachelle McNeill, Kestrel Button, Brenton Kulasegaram, Kulamakan Inter-institutional data-driven education research: consensus values, principles, and recommendations to guide the ethical sharing of administrative education data in the Canadian medical education research context |
title | Inter-institutional data-driven education research: consensus values, principles, and recommendations to guide the ethical sharing of administrative education data in the Canadian medical education research context |
title_full | Inter-institutional data-driven education research: consensus values, principles, and recommendations to guide the ethical sharing of administrative education data in the Canadian medical education research context |
title_fullStr | Inter-institutional data-driven education research: consensus values, principles, and recommendations to guide the ethical sharing of administrative education data in the Canadian medical education research context |
title_full_unstemmed | Inter-institutional data-driven education research: consensus values, principles, and recommendations to guide the ethical sharing of administrative education data in the Canadian medical education research context |
title_short | Inter-institutional data-driven education research: consensus values, principles, and recommendations to guide the ethical sharing of administrative education data in the Canadian medical education research context |
title_sort | inter-institutional data-driven education research: consensus values, principles, and recommendations to guide the ethical sharing of administrative education data in the canadian medical education research context |
topic | Commissioned Scientific Reports |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10690000/ https://www.ncbi.nlm.nih.gov/pubmed/38045068 http://dx.doi.org/10.36834/cmej.75874 |
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