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Inter-institutional data-driven education research: consensus values, principles, and recommendations to guide the ethical sharing of administrative education data in the Canadian medical education research context

BACKGROUND: Administrative data are generated when educating, licensing, and regulating future physicians but these data are rarely used beyond their pre-specified purposes. The capacity necessary for sensitive and responsive oversight that supports the sharing of administrative medical education da...

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Autores principales: Grierson, Lawrence, Cavanagh, Alice, Youssef, Alaa, Lee-Krueger, Rachelle, McNeill, Kestrel, Button, Brenton, Kulasegaram, Kulamakan
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Canadian Medical Education Journal 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10690000/
https://www.ncbi.nlm.nih.gov/pubmed/38045068
http://dx.doi.org/10.36834/cmej.75874
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author Grierson, Lawrence
Cavanagh, Alice
Youssef, Alaa
Lee-Krueger, Rachelle
McNeill, Kestrel
Button, Brenton
Kulasegaram, Kulamakan
author_facet Grierson, Lawrence
Cavanagh, Alice
Youssef, Alaa
Lee-Krueger, Rachelle
McNeill, Kestrel
Button, Brenton
Kulasegaram, Kulamakan
author_sort Grierson, Lawrence
collection PubMed
description BACKGROUND: Administrative data are generated when educating, licensing, and regulating future physicians but these data are rarely used beyond their pre-specified purposes. The capacity necessary for sensitive and responsive oversight that supports the sharing of administrative medical education data across institutions for research purposes needs to be developed. METHOD: A pan-Canadian consensus-building project was undertaken to develop agreement on the goals, benefits, risks, values, and principles that should underpin inter-institutional data-driven medical education research in Canada. A survey of key literature, consultations with various stakeholders and five successive knowledge synthesis workshops informed this project. Propositions were developed, driving subsequent discussions until collective agreement was distilled. RESULTS: Consensus coalesced around six key principles: establishing clear purposes, rationale, and methodology for inter-institutional data-driven research a priori; informed consent from data generators in education systems is non-negotiable; multi-institutional data sharing requires special governance; data governance should be guided by data sovereignty; data use should be guided by an identified set of shared values; and best practices in research data-management should be applied. CONCLUSION: We recommend establishing a representative governance body, engaging trusted data facility, and adherence to extant data management policies when sharing administrative medical education data for research purposes in Canada.
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spelling pubmed-106900002023-12-02 Inter-institutional data-driven education research: consensus values, principles, and recommendations to guide the ethical sharing of administrative education data in the Canadian medical education research context Grierson, Lawrence Cavanagh, Alice Youssef, Alaa Lee-Krueger, Rachelle McNeill, Kestrel Button, Brenton Kulasegaram, Kulamakan Can Med Educ J Commissioned Scientific Reports BACKGROUND: Administrative data are generated when educating, licensing, and regulating future physicians but these data are rarely used beyond their pre-specified purposes. The capacity necessary for sensitive and responsive oversight that supports the sharing of administrative medical education data across institutions for research purposes needs to be developed. METHOD: A pan-Canadian consensus-building project was undertaken to develop agreement on the goals, benefits, risks, values, and principles that should underpin inter-institutional data-driven medical education research in Canada. A survey of key literature, consultations with various stakeholders and five successive knowledge synthesis workshops informed this project. Propositions were developed, driving subsequent discussions until collective agreement was distilled. RESULTS: Consensus coalesced around six key principles: establishing clear purposes, rationale, and methodology for inter-institutional data-driven research a priori; informed consent from data generators in education systems is non-negotiable; multi-institutional data sharing requires special governance; data governance should be guided by data sovereignty; data use should be guided by an identified set of shared values; and best practices in research data-management should be applied. CONCLUSION: We recommend establishing a representative governance body, engaging trusted data facility, and adherence to extant data management policies when sharing administrative medical education data for research purposes in Canada. Canadian Medical Education Journal 2023-11-08 /pmc/articles/PMC10690000/ /pubmed/38045068 http://dx.doi.org/10.36834/cmej.75874 Text en © 2023 Grierson, Cavanagh, Youssef, Lee-Krueger, McNeill, Button, Kulasegaram; licensee Synergies Partners. https://creativecommons.org/licenses/by-nc-nd/4.0/This is an Open Journal Systems article distributed under the terms of the Creative Commons Attribution License. (https://creativecommons.org/licenses/by-nc-nd/4.0 (https://creativecommons.org/licenses/by-nc-nd/4.0/) ) which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is cited.
spellingShingle Commissioned Scientific Reports
Grierson, Lawrence
Cavanagh, Alice
Youssef, Alaa
Lee-Krueger, Rachelle
McNeill, Kestrel
Button, Brenton
Kulasegaram, Kulamakan
Inter-institutional data-driven education research: consensus values, principles, and recommendations to guide the ethical sharing of administrative education data in the Canadian medical education research context
title Inter-institutional data-driven education research: consensus values, principles, and recommendations to guide the ethical sharing of administrative education data in the Canadian medical education research context
title_full Inter-institutional data-driven education research: consensus values, principles, and recommendations to guide the ethical sharing of administrative education data in the Canadian medical education research context
title_fullStr Inter-institutional data-driven education research: consensus values, principles, and recommendations to guide the ethical sharing of administrative education data in the Canadian medical education research context
title_full_unstemmed Inter-institutional data-driven education research: consensus values, principles, and recommendations to guide the ethical sharing of administrative education data in the Canadian medical education research context
title_short Inter-institutional data-driven education research: consensus values, principles, and recommendations to guide the ethical sharing of administrative education data in the Canadian medical education research context
title_sort inter-institutional data-driven education research: consensus values, principles, and recommendations to guide the ethical sharing of administrative education data in the canadian medical education research context
topic Commissioned Scientific Reports
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10690000/
https://www.ncbi.nlm.nih.gov/pubmed/38045068
http://dx.doi.org/10.36834/cmej.75874
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