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Electronic reporting of rare endocrine conditions within a clinical network: results from the EuRRECa project

OBJECTIVE: The European Registries for Rare Endocrine Conditions (EuRRECa, eurreb.eu) includes an e-reporting registry (e-REC) used to perform surveillance of conditions within the European Reference Network (ERN) for rare endocrine conditions (Endo-ERN). The aim of this study was to report the expe...

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Detalles Bibliográficos
Autores principales: Ali, S R, Bryce, J, Priego-Zurita, A L, Cherenko, M, Smythe, C, de Rooij, T M, Cools, M, Danne, T, Katugampola, H, Dekkers, O M, Hiort, O, Linglart, A, Netchine, I, Nordenstrom, A, Attila, P, Persani, L, Reisch, N, Smyth, A, Sumnik, Z, Taruscio, D, Visser, W E, Pereira, A M, Appelman-Dijkstra, N M, Ahmed, S F
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Bioscientifica Ltd 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10692689/
https://www.ncbi.nlm.nih.gov/pubmed/37902973
http://dx.doi.org/10.1530/EC-23-0434