Cargando…
Electronic reporting of rare endocrine conditions within a clinical network: results from the EuRRECa project
OBJECTIVE: The European Registries for Rare Endocrine Conditions (EuRRECa, eurreb.eu) includes an e-reporting registry (e-REC) used to perform surveillance of conditions within the European Reference Network (ERN) for rare endocrine conditions (Endo-ERN). The aim of this study was to report the expe...
Autores principales: | Ali, S R, Bryce, J, Priego-Zurita, A L, Cherenko, M, Smythe, C, de Rooij, T M, Cools, M, Danne, T, Katugampola, H, Dekkers, O M, Hiort, O, Linglart, A, Netchine, I, Nordenstrom, A, Attila, P, Persani, L, Reisch, N, Smyth, A, Sumnik, Z, Taruscio, D, Visser, W E, Pereira, A M, Appelman-Dijkstra, N M, Ahmed, S F |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Bioscientifica Ltd
2023
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10692689/ https://www.ncbi.nlm.nih.gov/pubmed/37902973 http://dx.doi.org/10.1530/EC-23-0434 |
Ejemplares similares
-
SUN-070 European Registries for Rare Endocrine Conditions (EuRRECa): Results from the Platform for E-reporting of Rare Endocrine Conditions (e-REC)
por: Ali, Salma R, et al.
Publicado: (2020) -
The EuRRECa Project as a Model for Data Access and Governance Policies for Rare Disease Registries That Collect Clinical Outcomes
por: Ali, Salma R., et al.
Publicado: (2020) -
Supporting international networks through platforms for standardised data collection—the European Registries for Rare Endocrine Conditions (EuRRECa) model
por: Ali, S. R., et al.
Publicado: (2021) -
The current landscape of European registries for rare endocrine conditions
por: Ali, S R, et al.
Publicado: (2018) -
Development of a pediatric differentiated thyroid carcinoma registry within the EuRRECa project: rationale and protocol
por: Clement, S C, et al.
Publicado: (2023)