The Burden of Sickle Cell Disease on Children and Their Caregivers: Caregiver Reports of Children’s Health-Related Quality of Life and School Experiences, Caregiver Burden, and Their Association with Frequency of Vaso-Occlusive Crises

BACKGROUND: Children with sickle cell disease (SCD) experience a multiplex of disease-related symptoms and complications, including vaso-occlusive crises (VOCs), episodes characterized by extreme pain. METHODS: A cross-sectional observational survey examined the health-related quality of life (HRQoL...

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Detalles Bibliográficos
Autores principales: Campbell, Andrew, Rizio, Avery A, McCausland, Kristen L, Iorga, Serban, Yen, Glorian P, Paulose, Jincy, Lee, Soyon
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Dove 2023
Materias:
Original Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10693247/
https://www.ncbi.nlm.nih.gov/pubmed/38046665
http://dx.doi.org/10.2147/PROM.S419607

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10693247/
https://www.ncbi.nlm.nih.gov/pubmed/38046665
http://dx.doi.org/10.2147/PROM.S419607

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