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Parental experiences and needs of caring for a child with 22q11.2 deletion syndrome
BACKGROUND: For a variety of reasons, raising a child with 22q11.2DS has significant psychosocial and financial repercussions for the family caregivers. Our aim was to identify and explain the expectations and concerns of Polish parents of 22q11.2DS children. An online survey was developed consistin...
| Autores principales: | , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
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BioMed Central
2023
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| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10696670/ https://www.ncbi.nlm.nih.gov/pubmed/38049864 http://dx.doi.org/10.1186/s13023-023-02980-3 |