Living with primary ciliary dyskinesia: a prospective qualitative study of knowledge sharing, symptom concealment, embarrassment, mistrust, and stigma

BACKGROUND: Primary ciliary dyskinesia (PCD) is a chronic respiratory disease for which there is little psycho-social research and no qualitative studies of individuals living with the condition. A questionnaire-based survey in 2003 found evidence of stigmatisation in some individuals with PCD. Alth...

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Detalles Bibliográficos
Autores principales: Whalley, Simon, McManus, IC
Formato: Texto
Lenguaje:English
Publicado: BioMed Central 2006
Materias:
Research Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1635565/
https://www.ncbi.nlm.nih.gov/pubmed/17040569
http://dx.doi.org/10.1186/1471-2466-6-25

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1635565/
https://www.ncbi.nlm.nih.gov/pubmed/17040569
http://dx.doi.org/10.1186/1471-2466-6-25

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