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A psychometric evaluation of the PedsQL™ Family Impact Module in parents of children with sickle cell disease
BACKGROUND: Caring for a child with a chronic condition, such as sickle cell disease, can have a significant impact on parents and families. In order to provide comprehensive care and support to these families, psychometrically sound instruments are needed as an initial step in measuring the impact...
| Autores principales: | , , |
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| Formato: | Texto |
| Lenguaje: | English |
| Publicado: |
BioMed Central
2009
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| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2678996/ https://www.ncbi.nlm.nih.gov/pubmed/19371442 http://dx.doi.org/10.1186/1477-7525-7-32 |