Genetic research on rare familial disorders: consent and the blurred boundaries between clinical service and research

OBJECTIVES: To study the consent process experienced by participants who are enrolled in a molecular genetic research study that aims to find new genetic mutations responsible for an apparently inherited disorder. DESIGN: Semi-structured interviews and analysis/description of main themes. PARTICIPAN...

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Detalles Bibliográficos
Autores principales: Ponder, M, Statham, H, Hallowell, N, Moon, J A, Richards, M, Raymond, F L
Formato: Texto
Lenguaje:English
Publicado: BMJ Publishing Group 2008
Materias:
Research Ethics
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2771893/
https://www.ncbi.nlm.nih.gov/pubmed/18757643
http://dx.doi.org/10.1136/jme.2006.018564

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2771893/
https://www.ncbi.nlm.nih.gov/pubmed/18757643
http://dx.doi.org/10.1136/jme.2006.018564

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