Mitochondrial disease: Needs and problems of children, their parents and family. A systematic review and pilot study into the need for information of parents during the diagnostic phase

OBJECTIVE: Firstly, this paper aims to systematically review the mitochondrial disease literature to identify studies assessing the needs and problems in the daily life of children with a mitochondrial disease and of their parents and family. The second aim is to provide more insight into the need f...

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Detalles Bibliográficos
Autores principales: Noorda, G., Hermans-Peters, M., Smeitink, J., van Achterberg, T., Kemps, H., Goverde, W., Schoonhoven, L.
Formato: Texto
Lenguaje:English
Publicado: Springer Netherlands 2007
Materias:
Original Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2794030/
https://www.ncbi.nlm.nih.gov/pubmed/17508266
http://dx.doi.org/10.1007/s10545-007-0426-0

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2794030/
https://www.ncbi.nlm.nih.gov/pubmed/17508266
http://dx.doi.org/10.1007/s10545-007-0426-0

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