Designing and implementing a longitudinal study of children with neurological, genetic or metabolic conditions: charting the territory

BACKGROUND: Children with progressive metabolic, neurological, or chromosomal conditions and their families anticipate an unknown lifespan, endure unstable and often painful symptoms, and cope with erratic emotional and spiritual crises as the condition progresses along an uncertain trajectory towar...

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Detalles Bibliográficos
Autores principales: Siden, Harold, Steele, Rose, Brant, Rollin, Cadell, Susan, Davies, Betty, Straatman, Lynn, Widger, Kimberley, Andrews, Gail S
Formato: Texto
Lenguaje:English
Publicado: BioMed Central 2010
Materias:
Study Protocol
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2954926/
https://www.ncbi.nlm.nih.gov/pubmed/20854664
http://dx.doi.org/10.1186/1471-2431-10-67

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2954926/
https://www.ncbi.nlm.nih.gov/pubmed/20854664
http://dx.doi.org/10.1186/1471-2431-10-67

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