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Designing and implementing a longitudinal study of children with neurological, genetic or metabolic conditions: charting the territory
BACKGROUND: Children with progressive metabolic, neurological, or chromosomal conditions and their families anticipate an unknown lifespan, endure unstable and often painful symptoms, and cope with erratic emotional and spiritual crises as the condition progresses along an uncertain trajectory towar...
| Autores principales: | , , , , , , , |
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| Formato: | Texto |
| Lenguaje: | English |
| Publicado: |
BioMed Central
2010
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| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2954926/ https://www.ncbi.nlm.nih.gov/pubmed/20854664 http://dx.doi.org/10.1186/1471-2431-10-67 |