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Scope and management of Patient Registries for orphan rare disease (ORD) meeting the demands of all involved stakeholders
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| Formato: | Texto |
| Lenguaje: | English |
| Publicado: |
BioMed Central
2010
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| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2958380/ http://dx.doi.org/10.1186/1750-1172-5-S1-O22 |