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Scope and management of Patient Registries for orphan rare disease (ORD) meeting the demands of all involved stakeholders
| Autor principal: | |
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| Formato: | Texto |
| Lenguaje: | English |
| Publicado: |
BioMed Central
2010
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| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2958380/ http://dx.doi.org/10.1186/1750-1172-5-S1-O22 |
| _version_ | 1782188330714136576 |
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| author | Hernberg-Ståhl, Elizabeth |
| author_facet | Hernberg-Ståhl, Elizabeth |
| author_sort | Hernberg-Ståhl, Elizabeth |
| collection | PubMed |
| description | |
| format | Text |
| id | pubmed-2958380 |
| institution | National Center for Biotechnology Information |
| language | English |
| publishDate | 2010 |
| publisher | BioMed Central |
| record_format | MEDLINE/PubMed |
| spelling | pubmed-29583802010-10-22 Scope and management of Patient Registries for orphan rare disease (ORD) meeting the demands of all involved stakeholders Hernberg-Ståhl, Elizabeth Orphanet J Rare Dis Oral Presentation BioMed Central 2010-10-19 /pmc/articles/PMC2958380/ http://dx.doi.org/10.1186/1750-1172-5-S1-O22 Text en Copyright ©2010 Hernberg-Ståhl; licensee BioMed Central Ltd. |
| spellingShingle | Oral Presentation Hernberg-Ståhl, Elizabeth Scope and management of Patient Registries for orphan rare disease (ORD) meeting the demands of all involved stakeholders |
| title | Scope and management of Patient Registries for orphan rare disease (ORD) meeting the demands of all involved stakeholders |
| title_full | Scope and management of Patient Registries for orphan rare disease (ORD) meeting the demands of all involved stakeholders |
| title_fullStr | Scope and management of Patient Registries for orphan rare disease (ORD) meeting the demands of all involved stakeholders |
| title_full_unstemmed | Scope and management of Patient Registries for orphan rare disease (ORD) meeting the demands of all involved stakeholders |
| title_short | Scope and management of Patient Registries for orphan rare disease (ORD) meeting the demands of all involved stakeholders |
| title_sort | scope and management of patient registries for orphan rare disease (ord) meeting the demands of all involved stakeholders |
| topic | Oral Presentation |
| url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2958380/ http://dx.doi.org/10.1186/1750-1172-5-S1-O22 |
| work_keys_str_mv | AT hernbergstahlelizabeth scopeandmanagementofpatientregistriesfororphanrarediseaseordmeetingthedemandsofallinvolvedstakeholders |