Neurofibromatosis Type 1 and the “Elephant Man's” Disease: The Confusion Persists: An Ethnographic Study

BACKGROUND: During informal interviews in the course of an ethnographic study on intergenerational dialogue between individuals with neurofibromatosis and their parents, many members of Canadian neurofibromatosis associations stated they continue to be told the condition that afflicts them or their...

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Detalles Bibliográficos
Autores principales: Legendre, Claire-Marie, Charpentier-Côté, Catherine, Drouin, Régen, Bouffard, Chantal
Formato: Texto
Lenguaje:English
Publicado: Public Library of Science 2011
Materias:
Research Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3036577/
https://www.ncbi.nlm.nih.gov/pubmed/21347399
http://dx.doi.org/10.1371/journal.pone.0016409

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3036577/
https://www.ncbi.nlm.nih.gov/pubmed/21347399
http://dx.doi.org/10.1371/journal.pone.0016409

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