Parenting a child with phenylketonuria or galactosemia: implications for health-related quality of life

Parents of children with chronic disorders have an impaired health-related quality of life (HRQoL) compared to parents of healthy children. Remarkably, parents of children with a metabolic disorder reported an even lower HRQoL than parents of children with other chronic disorders. Possibly, the unce...

Descripción completa

Detalles Bibliográficos
Autores principales: ten Hoedt, Amber E., Maurice-Stam, Heleen, Boelen, Carolien C. A., Rubio-Gozalbo, M. Estela, van Spronsen, Francjan J., Wijburg, Frits A., Bosch, Annet M., Grootenhuis, Martha A.
Formato: Texto
Lenguaje:English
Publicado: Springer Netherlands 2011
Materias:
Galactosemia
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3063540/
https://www.ncbi.nlm.nih.gov/pubmed/21290186
http://dx.doi.org/10.1007/s10545-010-9267-3

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3063540/
https://www.ncbi.nlm.nih.gov/pubmed/21290186
http://dx.doi.org/10.1007/s10545-010-9267-3

Ejemplares similares